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Bélanger-Dibblee, M., Pham Thi-Desmarteau, S., Jacques, M. C., Tremblay, H., & Roy-Desruisseaux, J. (2023). The Experiences, Needs, and Solutions of Caregivers of Patients With Behavioral and Psychological Symptoms of Dementia Living in Residential and Long-Term Care Centers. Qualitative health research, 10497323231173854. Advance online publication. https://doi.org/10.1177/10497323231173854

Bleibel, M., El Cheikh, A., Sadier, N. S., & Abou-Abbas, L. (2023). The effect of music therapy on cognitive functions in patients with Alzheimer's disease: a systematic review of randomized controlled trials. Alzheimer's research & therapy, 15(1), 65. https://doi.org/10.1186/s13195-023-01214-9

Duplantier, S. C., & Williamson, F. A. (2023). Barriers and Facilitators of Health and Well-Being in Informal Caregivers of Dementia Patients: A Qualitative Study. International journal of environmental research and public health, 20(5), 4328. https://doi.org/10.3390/ijerph20054328

James, I. A., Reichelt, K., Shirley, L., & Moniz-Cook, E. (2023). Management of Agitation in Behaviours That Challenge in Dementia Care: Multidisciplinary Perspectives on Non-Pharmacological Strategies. Clinical interventions in aging, 18, 219-230. https://doi.org/10.2147/CIA.S399697

Jayakody, S., & Arambepola, C. (2023). Patient and caregiver perspectives on quality of life in dementia: Evidence from a South Asian population. PloS one, 18(5), e0285701. https://doi.org/10.1371/journal.pone.0285701

Kieboom, R. V. D., Mark, R., Snaphaan, L., Assen, M. V., & Bongers, I. (2023). Influence of Sense of Competence, Empathy and Relationship Quality on Burden in Dementia Caregivers: A 15 Months Longitudinal Study. Journal of applied gerontology : the official journal of the Southern Gerontological Society, 42(3), 464-473. https://doi.org/10.1177/07334648221138545

Kozlov, E., McDarby, M., Pagano, I., Llaneza, D., Owen, J., & Duberstein, P. (2022). The feasibility, acceptability, and preliminary efficacy of an mHealth mindfulness therapy for caregivers of adults with cognitive impairment. Aging & mental health, 26(10), 1963-1970. https://doi.org/10.1080/13607863.2021.1963949

Nemcikova, M., Katreniakova, Z., & Nagyova, I. (2023). Social support, positive caregiving experience, and caregiver burden in informal caregivers of older adults with dementia. Frontiers in public health, 11, 1104250. https://doi.org/10.3389/fpubh.2023.1104250

Pinyopornpanish, K., Soontornpun, A., Wongpakaran, T., Wongpakaran, N., Tanprawate, S., Pinyopornpanish, K., Nadsasarn, A., & Pinyopornpanish, M. (2022). Impact of behavioral and psychological symptoms of Alzheimer's disease on caregiver outcomes. Scientific reports, 12(1), 14138. https://doi.org/10.1038/s41598-022-18470-8

Warren A. (2023). An integrative approach to dementia care. Frontiers in aging, 4, 1143408. https://doi.org/10.3389/fragi.2023.1143408

Peer-Reviewed Journal Article References:

Basak, C., Qin, S., & O'Connell, M. A. (2020). Differential effects of cognitive training modules in healthy aging and mild cognitive impairment: A comprehensive meta-analysis of randomized controlled trials. Psychology and Aging, 35(2), 220–249.

Batthyány, A., & Greyson, B. (2021). Spontaneous remission of dementia before death: Results from a study on paradoxical lucidity. Psychology of Consciousness: Theory, Research, and Practice, 8(1), 1–8.

Carling, M. A. (2003). Review of Counseling the Alzheimer's caregiver: A resource for healthcare professionals [Review of the book Counseling the alzheimer's caregiver: A resource for healthcare professionals, by M. S. Mittelman, C. Epstein & A. Pierzchala]. Families, Systems, & Health, 21(4), 435–437.

De Lucia, N., Grossi, D., Milan, G., & Trojano, L. (2020). The closing-in phenomenon in constructional tasks in dementia and mild cognitive impairment. Neuropsychology, 34(2), 168–175.

Di Nuovo, S., De Beni, R., Borella, E., Marková, H., Laczó, J., & Vyhnálek, M. (2020). Cognitive impairment in old age: Is the shift from healthy to pathological aging responsive to prevention? European Psychologist, 25(3), 174–185.

Gather, J., & Vollmann, J. (2015). How to decide? Evaluating the will of a person with dementia in the light of current behavior, advance directive and legal representatives’ perspectives. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry, 28(1), 17–20.

Kuemmel, A., Haberstroh, J., & Pantel, J. (2014). CODEM instrument: Developing a tool to assess communication behavior in dementia. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry, 27(1), 23–31. 

Martin, K., Lang, F. R., Rupprecht, R., & Nömer, J. (2021). Dementia worry and the perception of personal risk: A longitudinal study. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry, 34(1), 23–30.

Maxfield, M., & Greenberg, J. (2021). Anticipated stigma and dementia-related anxiety in middle-aged and older adults. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry, 34(1), 13–22.

Maxfield, M., Cui, R., Roberts, J. R., & Fiske, A. (2021). Interest in dementia testing: Family history, dementia-related anxiety, and coping. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry, 34(1), 5–11.

McDowd, J., Hoffman, L., Rozek, E., Lyons, K. E., Pahwa, R., Burns, J., & Kemper, S. (2011). Understanding verbal fluency in healthy aging, Alzheimer's disease, and Parkinson's disease. Neuropsychology, 25(2), 210–225. 

Moreau, N., Rauzy, S., Viallet, F., & Champagne-Lavau, M. (2016). Theory of mind in Alzheimer disease: Evidence of authentic impairment during social interaction. Neuropsychology, 30(3), 312–321.

Robitaille, A., Garcia, L., & McIntosh, C. (2015). Joint trajectories of cognitive functioning and challenging behavior for persons living with dementia in long-term care. Psychology and Aging, 30(3), 712–726.

Schall, A., Haberstroh, J., & Pantel, J. (2015). Time series analysis of individual music therapy in dementia: Effects on communication behavior and emotional well-being. GeroPsych: The Journal of Gerontopsychology and Geriatric Psychiatry, 28(3), 113–122. 

Schulz, R., Belle, S. H., Czaja, S. J., Gitlin, L. N., Wisniewski, S. R., & Ory, M. G. (2003). Introduction to the special section on Resources for Enhancing Alzheimer's Caregiver Health (REACH). Psychology and Aging, 18(3), 357–360. 


Wilson, R. S., Barnes, L. L., Rajan, K. B., Boyle, P. A., Sytsma, J., Weuve, J., & Evans, D. A. (2018). Antecedents and consequences of unawareness of memory impairment in dementia. Neuropsychology, 32(8), 931–940.

Additional References:
Alzheimer’s Association. 2018 Alzheimer’s Disease Facts and Figures. Alzheimers Dement 2018;14(3):367429.

Bird, Michael; LlewellynJones, Robert H.; Korten, Ailsa; An evaluation of the effectiveness of a casespecific approach to challenging behaviour associated with dementia; Aging & Mental Health; Jan. 2009; Vol. 13; Issue 1; p 7382

Eckstein, Donna; Eckstein, Sarah; Eckstein, Daniel. Creating Respect in Couples: The Couple’s Respect Questionnaire (CRQ). Family Journal. Jan2014, Vol. 22 Issue 1, p98104. 7p. DOI: 10.1177/1066480713505062.

Glenner, Joy A.; Stehman, Jean M.; Davagnino, Judith; Galante, Margaret J.; Green, Martha L.; "When Your Loved One Has Dementia:  A Simple Guide for Caregivers"; John Hopkins University Press.; Baltimore, MD.; 2005.

Gottlieb, B. H.; Johnson, J.; Respite programs for caregivers of persons with dementia: a review with practice implications;  Aging & Mental Health; May2000; Vol. 4 Issue 2

Hopper, Tammy; Bourgeois, Michelle; Pimentel, Jane; Qualls, Constance Dean; Hickey, Ellen; Frymark, Tobi; Schooling, Tracy. An EvidenceBased Systematic Review on Cognitive Interventions for Individuals With Dementia. American Journal of SpeechLanguage Pathology. Feb2013, Vol. 22 Issue 1, p126145. 20p. 3 Charts. DOI: 10.1044/10580360(2012/110137).

KassBartelmes BL, Hughes R, Rutherford MK. Advance care planning: preferences for care at the end of life. Rockville (MD): Agency for Healthcare Research and Quality; 2003. Research in Action Issue #12. AHRQ Pub No. 030018, p120.

Keough, Jeremy; Huebner, Ruth A.; Treating Dementia: The Complementing Team Approach of Occupational Therapy and Psychology;  Journal of Psychology; Jul2000; Vol. 134 Issue 4

Koenig Coste, Joanne.; "Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with the Disease"; Houghton Mifflin.; New York, NY.; 2003.

Kydd, Angela; Touhy, Theris; Newman, David; Fagerberg, Ingegerd; Engstrom, Gabriella. Attitudes towards caring for older people in Scotland, Sweden and the United States. Nursing Older People. Mar2014, Vol. 26 Issue 2, p3340. 8p.

Lou, MeeiFang; The use of music to decrease agitated behavior of the demented elderly: the state of the science; Scandinavian Journal of Caring Sciences;  Jun2001; Vol. 15 Issue 2

McCallion, Philip; Toseland, Ronald W.; Gerber, Todd; Banks, Steven; Increasing the Use of Formal Services by Caregivers of People with Dementia;  Social Work; Jul2004; Vol. 49 Issue 3

MezadeLuna, M. E.; RomeroZepeda, H. Trames: Areas of Conflict in the Intimte Couple. A Journal of the Humanities & Social Sciences. 2013, Vol. 17 Issue 1, p87100. 14p. 1 Diagram. DOI: 10.3176/tr.2013.1.04.

Min, Lillian; Wenger, Neil; Walling, Anne M.; Blaum, Caroline; Cigolle, Christine; Ganz, David A.; Reuben, David; Shekelle, Paul; Roth, Carol; Kerr, Eve A. When Comorbidity, Aging, and Complexity of Primary Care Meet: Development and Validation of the Geriatric CompleXity of Care Index. Journal of the American Geriatrics Society. Apr2013, Vol. 61 Issue 4, p542550. 9p. 1 Diagram, 3 Charts. DOI: 10.1111/jgs.12160.

Missouri End of Life Coalition’s and End of Life in the Nursing Home Task Force. Guidelines for EndofLife Care in LongTerm Care Facilities, Missouri Department of Health and Senior Services Division of Senior Services and Regulation, September 2003, p1238.

Mitrani, V.B.; Czaja, S. J.; Familybased therapy for dementia caregivers: clinical observations; Aging & Mental Health, Aug2000; Vol. 4 Issue 3

Myers, Jane & Melanie Harper.; EvidenceBased Effective Practices With Older Adults; Journal of Counseling & Development, Spring 2004, Vol. 82, Issue 2.

Neufeld, A.; Harrison, M.J.; Unfulfilled expectations and negative interactions: nonsupport in the relationships of women caregivers;  Journal of Advanced Nursing; Feb2003; Vol. 41 Issue 4

Perissutti, Christina; Barraca, Jorge. Integrative Behavioral Couple Therapy vs. Traditional Behavioral Couple Therapy: A theoretical review of the differential effectiveness. Clinica y Salud. mar2013, Vol. 24 Issue 1, p1118. 8p. 1 Chart. DOI: 10.5093/c12013a2.

Pocnet, Cornelia; Rossier, Jérôme; Antonietti, JeanPhilippe; Gunten, Armin. Personality traits and behavioral and psychological symptoms in patients at an early stage of Alzheimer's disease. International Journal of Geriatric Psychiatry. Mar2013, Vol. 28 Issue 3, p276283. 8p. 2 Charts, 2 Graphs. DOI: 10.1002/gps.3822.

Quadagno, Jill, Aging & the Life Course: Student Edition, 4th Ed., OnlineLearningCenter. McGrawHill Higher Education 2008

Quinn, Catherine; Anderson, Daniel; Toms, Gill; Whitaker, Rhiannon; Edwards, Rhiannon Tudor; Jones, Carys; Clare, Linda. Selfmanagement in earlystage dementia: a pilot randomised controlled trial of the efficacy and costeffectiveness of a selfmanagement group intervention (The SMART study). Trials. 2014, Vol. 15 Issue 1, p118. 18p. 1 Chart. DOI: 10.1186/174562151574.

Robinson, Karen M.; Adkisson, Pam; Weinrich, Sally; Problem behavior, caregiver reactions, and impact among caregivers of persons with Alzheimer’s disease; Journal of Advanced Nursing; Nov2001; Vol. 36 Issue 4

Rognmo, Kamilla; Torvik, Fartein A.; Idstad, Mariann; Tambs, Kristian. More mental health problems after divorce in couples with high predivorce alcohol consumption than in other divorced couples: results from the HUNTstudy. BMC Public Health. 2013, Vol. 13 Issue 1, p111. 11p. 8 Charts. DOI: 10.1186/1471245813852.

Smith, Amanda G.; Behavioral problems in dementia; Postgraduate Medicine; Jun2004; Vol. 115 Issue 6

Sussman, Tamara; Regehr, Cheryl; The Influence of CommunityBased Services on the Burden of Spouses Caring for Their Partners with Dementia; Health & Social Work; Feb. 2009; Vol. 34; Issue 1; p 2940

Tambling, Rachel B.; Wong, Alison G.; Anderson, Shayne R. Expectations About Couple Therapy: A Qualitative Investigation. American Journal of Family Therapy. Jan/Feb2014, Vol. 42 Issue 1, p2941. 13p. DOI: 10.1080/01926187.2012.747944.

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Tzeng, YuLing; Lin, LiChan; Shyr, YeaIng Lotus; Wen, JungKwang; Sexual behavior of institutionalized residents with dementia – a qualitative study; Journal of Clinical Nursing; April 2009; Vol. 13; Issue 7; p 991 1001

Werth, J., Gordon, J., & R. Johnson; Psychosocial Issues Near the End of Life; Aging & Mental Health; Nov. 2002, Vol. 6, Issue 4.


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